The 8am MRI was bumped to the afternoon. We were disappointed not to get answers early, but the delay gave us more time to discuss our plan. We made a big decision to have him transferred to Lurie Children’s Hospital of Chicago via air. Discharge is not possible, and ground is too far. We feel that it is best to be home with our network,…
We are only about 17 hours into having some vague answers to the past week. If we reflect back, hindsight is 20/20. Alexander’s sleep patterns had shifted, but we thought it was just a part of him being a growing little kid. On 5/26, Matt got a call from school that he had been hit in the head with a toy in the forehead. The…
As you likely know, Alexander is a bright ray of sunshine that warms the world. He is positive, kind, silly, inquisitive, musical, and most of all loving–he has every perfect characteristic of a joyful child, and he is loved by everyone he meets. We will share our journey here so that our family and friends have the latest updates on his story. We are committed…
