One of the things I never anticipated when Alexander was diagnosed with childhood brain cancer was the community we would find along the way. When Polly was diagnosed, her mom Claire was connected to me…
Dec. 8, 2025: Alexander’s Scans (no progression!) and the St. Jude Marathon Weekend
(Written by Christy) Today was a big day. Keep going! Alexander had his scan this morning at St. Jude Children’s Research Hospital, and we are so relieved to share that it shows no progression. Those…
Nov. 19, 2025: Advocating for Give Kids a Chance Act with Senator Duckworth
Recently, Matt and I had the incredible opportunity to speak with Senator Tammy Duckworth about Alexander’s journey and the urgent need for progress in childhood cancer research. I am still surprised that she used my…
October 7, 2025: Science, Heart, and a Little LinkedIn Magic!
Last night at Wellness House, Matt Brown and I had the incredible honor of introducing Dr. Jim Olson, a physician-scientist from Seattle Children’s whose work has been a guiding light for our family for over…
September 12, 2025: Alexander’s Scan: No Progression!
Matt Brown and I got the results! —and we’re breathing a little easier. No progression. That’s the best news we could have hoped for today. These moments of relief mean everything, and we just wanted…
June 6, 2025: No Disease Progression!
Another trip to St. Jude, another scan, and another overwhelming sense of relief! We have had so much going on–busy at work, end of school, planning for summer–that we have not talked about or dwelt…
April 28, 2025: WDEF News 12 Chattanooga Story!
Not only did we get on the news in Chicago; WDEF News 12 in Chattanooga covered our story too! Thanks to Kay Blevins for highlighting Alexander and our whole family and bringing awareness to the…
March 27, 2025: CBS Chicago Story About Us!
As I teased in my last post, we were honored to have CBS Chicago come to our home to help bring the story of our trip to Washington to a wider audience! The crew interviewed…
March 12, 2025: Washington, DC!
We are just back from a very important and memorable trip to Washington, D.C.! Through Nancy Goodman, the executive director of Kids V Cancer, we learned that some very important legislation regarding childhood cancer research…
March 8, 2025: Another 3 Months to Breathe!
We had very acute scanxiety leading up to this scan, both Christy and I. We aren’t sure why–Alexander is doing wonderfully well. His energy is up, school is going great, and he gets stronger and…