He had some pretty rough moments after anesthesia, but we made it! 

Quite a day. But most are right now.

Then, we learned that I would have to administer a shot today through Sunday if we were to still go to Nashville. Or I could take him to clinic each day of the weekend.  His ANC counts are low yet again. 😞 His bone marrow is already working so hard against both radiation and chemo. 😢 🥹

I braved my worst fears and learned to give my baby a shot. When he said, “I don’t want my mommy to do it.” I somehow came up with it not hurting as much when mommy does it. My hand was shaking furiously, and I messed it up a bit but got it in! To my amazement, this was the first time of 6 that he didn’t cry!!! 😀 St. Jude Children’s Research Hospital Rally Foundation for Childhood Cancer Research

Later, I did a total DTCB thing. Brittany Doucey, my RMH sis, showed me a pic of a bee car. I asked her where it was, and it was here! It was still there when we finished the day today! So, what’d I do? I wrote him a note and wrapped Alexander’s bracelet around it and asked the valet team to put it in his car. 😂 

Then, the owner of the cars texted me in response to the note! Alexander will get to drive in these bee cars! Insanely fun!

Soon after, we had a surprise visit from Stacie Smith Blankenship to Ronald McDonald House of Memphis! So special. Look at that love!

I was going to drive to Nashville tonight with him, but I was pretty tired from the week, wanted to do some cleaning, and rest and do legos with him. 🥰

He took ALL the prescriptions and bathed and brushed his teeth and did mouth wash and everything to prevent infection. He was a champ. MY champ! OUR champ! 

The visible responses are starting to show.

IT IS SO HARD TO SEE! His hair is leaving. His spine and head are tanning from the radiation, and he will only be halfway after Monday. 😢. I’ll spare you the images, but you can google radiation dermatitis. We advocated and got him a prescription to treat prophylactically. I hope that it will help!

We are starting impossible conversations about where and how to do months and months of intensive and dangerous chemo. I still have trouble every hour understanding how this is our new life. We are strong! We will survive this! Buddy Strong Brand

I’d say he is stronger than most of the people I know. I couldn’t do what he is doing with his amazing attitude, and I fancy myself pretty positive and optimistic.

I want to keep thank everyone for your support! @everyone

🐝💪🏻

#Beelieve
#AlexanderStrong
#pediatriccancer
#medulloblastoma