Today was the final day of proton therapy to Alexander’s full brain and spine.  It’s hard to believe we’ve been through 20 radiation treatments, 20 anesthesias, 20 stressful wakeups.  Tomorrow he starts his boost treatments, radiation focused on the tumor bed and the spots on his spine.  We think the process will take a bit less time, and we hope that the toll on Alexander will not be as severe.

Alexander has been tired all day.  We got an early start, and he was not interested in drinking caloric drinks this morning, so he has been lethargic all day long.  I made him a protein shake this afternoon, which he drank fairly enthusiastically, but he still is way behind on caloric intake for the day.  The good news is that he was up to 17.2 kg this morning, so he gained a little over the weekend.  We hope the appetite stimulant kicks in and makes him ravenous—we’ll feed him whatever he wants, whenever he wants.