Posts Published by Matt Brown

in Cancer Update

Tumor Board

on June 29, 2023 July 20, 2023

I just wanted to expand on Christy’s expression of anger yesterday. I feel it too, in waves. We are not angry at people; we are angry at the obscene injustice of this situation. Hours after…

in Cancer Update

DINNER!!!

on June 6, 2023 July 20, 2023

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Alexander is now watching Bluey and eating what has to be the best-tasting cheeseburger with mac and cheese and apple juice he’s ever had! After having to console him through many hours of no food…

in Cancer Update

EVD

on June 6, 2023 July 20, 2023

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Alexander is now back in his room in PICU after the placement of an external ventricular drain. The anesthesia is wearing off, and we have gotten him to go back to sleep as that happens….

in Cancer Update

Reuniting at Scottish Rite; Ronald McDonald House

on June 6, 2023 July 20, 2023

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I (Matt) said goodbye to Christy and Alexander at 7:30 or so as they left in the ambulance for Atlanta. Then, I retreated to the haven of Ronald McDonald House to have a good meal…

in Cancer Update

MRI, Bucket of Smiles, and Transfer Travails

on June 5, 2023 July 20, 2023

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The 8am MRI was bumped to the afternoon. We were disappointed not to get answers early, but the delay gave us more time to discuss our plan. We made a big decision to have him…