We are going home! I needed to go home and said so. I have not been home in a month after starting “vacation.” We were delayed for our flight. Then, Alexander delayed the entire plane…
Tomorrow – come see us and then back to Memphis
Take a look at our amazing Charlotte thriving at her incredible camp! We were delayed and delayed and just landed. Mama and Daddy picked us up just now! Party at our place tomorrow and all…
Christy is second guessing
I don’t know what to do. We gained addition information today that is so challenging to learn on a day like today. This dose is extremely high. I don’t think I will ever know what…
This is reality and may be difficult to read
Matt and I are devastated to say the least. 5% of medulloblastoma tumors are MYC amplified. 1 in 2 million children have what Alexander has. I am struggling with needing people to understand exactly what…
Charlotte at camp and letters
I’ll add some updates from the weekend later on but wanted to add this ASAP. Our girl is already large and in charge at camp. She is doing her first sleep away camp and months…
Disclaimer: Prepare yourself for this read – tumor, pricks, EVD, and tomorrow
Waiting. We have done a lot of that, and I am confident we have only scratched the surface. As Alexander was an add-on due to the very unconventional nature of our arrival, he was scheduled…
