I can’t recall if I explained how hysterical I was when we learned about the tumor. When the ER doc had said that a CT scan was not clinically indicated, he also mentioned that a…
Reuniting at Scottish Rite; Ronald McDonald House
I (Matt) said goodbye to Christy and Alexander at 7:30 or so as they left in the ambulance for Atlanta. Then, I retreated to the haven of Ronald McDonald House to have a good meal…
June 06, 2023
We made it! Whew. What a ride. I always say I love new experiences, but I don’t need that one again. 😂 730CT-230ET. It was about 6 hours total transit time in the back of…
The Real Deal – Fun Dip, Bus Ride, and Bees
Oh how sweet it is! The Fun Dip is here! With a 30 minute turnaround, Christy and Alexander were on the bus pretty quickly. They are about halfway to CHOA in Atlanta. Alexander is feeling…
More transfer talk
As we await Alexander to finish his MRI and recover from anesthesia, what news we have received! We still still have tears of joy in all of our eyes. We never would have understood it…
MRI, Bucket of Smiles, and Transfer Travails
The 8am MRI was bumped to the afternoon. We were disappointed not to get answers early, but the delay gave us more time to discuss our plan. We made a big decision to have him…
ER, CT, Transfer to Pensacola
We are only about 17 hours into having some vague answers to the past week. If we reflect back, hindsight is 20/20. Alexander’s sleep patterns had shifted, but we thought it was just a part…
Our Alexander
As you likely know, Alexander is a bright ray of sunshine that warms the world. He is positive, kind, silly, inquisitive, musical, and most of all loving–he has every perfect characteristic of a joyful child,…