As I teased in my last post, we were honored to have CBS Chicago come to our home to help bring the story of our trip to Washington to a wider audience! The crew interviewed Christy and me, and then we brought the kids home from school to contribute to the story too. The 3-minute segment they produced is absolutely amazing. Click here for the…
We are just back from a very important and memorable trip to Washington, D.C.! Through Nancy Goodman, the executive director of Kids V Cancer, we learned that some very important legislation regarding childhood cancer research and care was before Congress, and we decided to try to make a difference. Christy first reached out to her extensive online network and prompted many of her contacts to…
We had very acute scanxiety leading up to this scan, both Christy and I. We aren’t sure why–Alexander is doing wonderfully well. His energy is up, school is going great, and he gets stronger and more capable (and more vocabularific!) all the time. There’s no good reason for us to think anything was wrong, but we both felt pessimistic. When your whole life comes down…
We haven’t posted in far too long. We have been focused on the moment and enjoying a wonderful summer filled with travel, experiences, and love. We’ll post more about those experiences in another post, but for now, let us say a huge thank you to Veronika and Bear Necessities and to Karen, Danielle, Emily, Emily, and others at Make-A-Wish. Now it’s back to real life….
Alexander is 5 years old today! As I write this, he is almost exactly 5 years old, born at 9:45 pm Eastern on January 10, 2019. Nothing (except Charlotte’s birth) could match the joy we felt then. Alexander has given us and everyone he knows five years of joy. May there be many more years ahead. On Monday, we went to the hospital to start…
When we came to the hospital a few days ago, it seemed like we had enough time for Alexander’s counts to allow us to be discharged before Christmas. But then, as time wore on and his counts did not rise—and, importantly, he continued to need platelet transfusions—we were prepared for a Christmas in the hospital. He is, as you know, a ray of sunshine, and…
Yesterday was a banner day for Alexander. In the afternoon, he got to have a play date with his good friend Sydney–the two of them are so cute together! In the morning, two very special guests came to the house. Alexander’s two favorite sports stars, Ella and Tatumn from the Chicago Red Stars, brought him some very special gifts from the team, including a ball…
Last night we had a much-needed gathering at home with our wonderful neighbors, friends, and family. After a month of feeling isolated from home and unsettled in every way, being in our home and feeling the embrace of people that love us was a beautiful experience. One of the best parts was seeing Alexander romp with his schoolmates Sydney, Mason, and Sadie–the joy on his…
