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Where do we begin?!?
Yesterday to today could not be more like night and day! His full brain and spine MRI is clean! We are beyond thankful! There are no words! We will face the fear every 3 months,…
Giving Thanks for Smooth Sailing
This will be a short update, to be filed under “no news is good news.” Alexander finished his second cycle of chemotherapy without any fevers or unexpected trips to the hospital, and his mood and…
Smoother Sailing in Cycle 2
We’ve held our breath for the last week, the second week of the cycle. Last cycle, Alexander had a low-grade fever on Day 10 that landed us in the hospital for five nights, until his…
Tissue Harvesting and Start of Round 2
Last week, Christy traveled to Phoenix for work. Her coworkers rallied around her and made a very generous donation to Rally, and a huge group of them participated in a run in Alexander’s honor. Once…
The Ups and Downs of Chemo
I had a post all written out last week, giving encouraging news about Alexander’s ever-increasing energy levels after getting home from inpatient chemo. He was very tired the first few days, but Monday and Tuesday…
Recovering from Inpatient Chemo
*DISCLAIMER* This was written just before Alexander was admitted to the hospital with a neutropenic fever. An update on that will follow shortly. Our first week of chemo is in the books. There were so…
Start of Chemo and Good News
We are finally back on the treatment path. We checked in to Comer Children’s Hospital yesterday morning, expecting chemo to start by the afternoon. We waited for about 7 hours in a holding room before…
Treatment Starting Again
Today was the last day of our inter-treatment period. We had great experiences with friends and family. Tomorrow, treatment starts again. We thought we were going to go to Lurie Children’s Hospital for treatment, but…