Alexander is 5 years old today! As I write this, he is almost exactly 5 years old, born at 9:45 pm Eastern on January 10, 2019. Nothing (except Charlotte’s birth) could match the joy we…
Home for Christmas!
When we came to the hospital a few days ago, it seemed like we had enough time for Alexander’s counts to allow us to be discharged before Christmas. But then, as time wore on and…
Back in the Hospital
We thought, after two rounds of chemo with no fevers, that we might avoid unexpected hospital stays for the rest of chemo. Nope. On Tuesday night, after a low-energy day, Alexander showed signs of a…
Where do we begin?!?
Yesterday to today could not be more like night and day! His full brain and spine MRI is clean! We are beyond thankful! There are no words! We will face the fear every 3 months,…
Giving Thanks for Smooth Sailing
This will be a short update, to be filed under “no news is good news.” Alexander finished his second cycle of chemotherapy without any fevers or unexpected trips to the hospital, and his mood and…
Smoother Sailing in Cycle 2
We’ve held our breath for the last week, the second week of the cycle. Last cycle, Alexander had a low-grade fever on Day 10 that landed us in the hospital for five nights, until his…
Tissue Harvesting and Start of Round 2
Last week, Christy traveled to Phoenix for work. Her coworkers rallied around her and made a very generous donation to Rally, and a huge group of them participated in a run in Alexander’s honor. Once…
The Ups and Downs of Chemo
I had a post all written out last week, giving encouraging news about Alexander’s ever-increasing energy levels after getting home from inpatient chemo. He was very tired the first few days, but Monday and Tuesday…