After much deliberation about the best options for Alexander and our whole family, we have decided to have Alexander’s chemotherapy done at Lurie Children’s Hospital in Chicago. St. Jude has been very good to us,…
Appetite Stimulant and More Choices
The boost treatments are underway. Alexander’s wakeups have not been any different, though we tried skipping the Precedex and letting him wake up quicker. No luck. We have resigned to getting him out of the…
Everything is hard
So dang hard. I keep trying to find lemonade. Here’s what I have today. When I sniff his head, it smells like when he was an infant. That’s all I got. Please keep sharing his…
Hot off the press!
2 days ago!!! Look what Rally Foundation for Childhood Cancer Research is funding for medulloblastoma! $150,000 in outside the box grants! We’re outside the box also! Ronald McDonald House of Memphis St. Jude Children’s Research…
Trying new things to calm post anesthesia rage
After 22 general anesthesias, chemo, and radiation treatments, we have decided that there is no way to ease his rage post anesthesia. Well, at least with medications. We went full force with all the happy…
If you know me then you know, I can be a lot
A lot of: Energy. Love. Optimism (to a fault). PASSION. Vulnerability. Just a little extra of so many things. Or maybe a lot. And it isn’t always easy to be vulnerable even though it may…
Day 20 of Radiation, Transitioning to Boost
Today was the final day of proton therapy to Alexander’s full brain and spine. It’s hard to believe we’ve been through 20 radiation treatments, 20 anesthesias, 20 stressful wakeups. Tomorrow he starts his boost treatments,…
Please consider donating in honor of Alexander
I’ve been a very regular blood donor. I’ve been meaning to post this, and I am thankful Brittany Doucey reminded me! The American Red Cross Blood Donors recently thought I dropped off the face of…
Fever and hospital visit
Please think of us today. Not the restful Sunday evening we were hoping for. A fever caused us to take him quickly to the hospital. Tests, antibiotics, IV, etc happening now. Hoping a virus. We…
Join me in running the St. Jude Memphis Marathon
I never thought this would be my 40th birthday party request. Join our team! Come join me in Memphis the weekend of 12/2 to celebrate my 40th, honor our baby, and run with me! There…