I ended my last post not knowing whether Alexander would get boost radiation to the areas of concern on his spine. Now we know: he will get 5 boost doses to those areas. We are…
9th of 30 RT treatments
I mostly try to share the brightest spots in our journey. I want people to share in our journey but know that we all need hope. This is hard. Everything is so very hard. I…
Boost Simulation and “Please”
It’s been a while since I’ve written an update. That’s mostly because things are fairly routine, and we aren’t learning much about his disease progression or cure right now. The signs of treatment have started…
Rally! Foundation
This is a similar post but sharing because everyone is so wonderful and wants to help! https://rallyfoundation.org/alexander-browns-fund/ The first shirt order closes tomorrow. 🙂 I feel like every person that I know asks me what…
Please read these big updates
This could be the most important post that we have asked you to share/repost for several reasons. Please tag me and Matt Brown. Please sign up for text or email alerts on this site. 🙂…
Current View
My current view as we wait for his carboplatin to be made. It usually takes an hour, and it is in EXTREMELY short supply so they have to be sure it will get used. And…
5am alarm and back to the grind.
I love him more than words can describe!!! Lots more to come when I have some time to share so many things. But for now. I bring you the winner of the stick horse at…
Nashville and more
And here we go! Mommy/Bubby road trip to Nashville! He finally got his chicken minis!!! So excited for a week couple of days with beautiful weather! AND HE ABSOLUTELY GOT THE TEN COUNT!!!!!!! He woke…
Shots, ANC counts, and spine tan
He had some pretty rough moments after anesthesia, but we made it! Quite a day. But most are right now. Then, we learned that I would have to administer a shot today through Sunday if…
Been a minute :) – Anesthesia, everything is hard, work, new platform, and ready for the weekend!
We had a breakthrough with anesthesia today. It has been so difficult to feel his rage as he wakes up. The screaming, hitting, choking. All the things that are not even remotely our little guy….