Scans show no progression of disease! After the nightmare of May and the extreme uncertainty of June, we are so glad to have the diagnosis confirmed. As we always say, this is not the end of anything; it’s just one step along the way. But these are the steps we are so, so happy to take.

We are still making our way through the post anesthesia grumpiness, but we are so relieved! Matt Brown and I have no words.

Thank you for everyone’s love and support during this terrifying time!!!

He said. “Mommy, can we do the love thing?” He was asking to make a heart with lights and take a picture like he did with Sissy last year. He was still loopy and couldn’t manage a smile, but he did it!