Last night at Wellness House, Matt Brown and I had the incredible honor of introducing Dr. Jim Olson, a physician-scientist from Seattle Children’s whose work has been a guiding light for our family for over…
Posts Published by Matt Brown
September 12, 2025: Alexander’s Scan: No Progression!
Matt Brown and I got the results! —and we’re breathing a little easier. No progression. That’s the best news we could have hoped for today. These moments of relief mean everything, and we just wanted…
June 6, 2025: No Disease Progression!
Another trip to St. Jude, another scan, and another overwhelming sense of relief! We have had so much going on–busy at work, end of school, planning for summer–that we have not talked about or dwelt…
April 28, 2025: WDEF News 12 Chattanooga Story!
Not only did we get on the news in Chicago; WDEF News 12 in Chattanooga covered our story too! Thanks to Kay Blevins for highlighting Alexander and our whole family and bringing awareness to the…
March 27, 2025: CBS Chicago Story About Us!
As I teased in my last post, we were honored to have CBS Chicago come to our home to help bring the story of our trip to Washington to a wider audience! The crew interviewed…
March 12, 2025: Washington, DC!
We are just back from a very important and memorable trip to Washington, D.C.! Through Nancy Goodman, the executive director of Kids V Cancer, we learned that some very important legislation regarding childhood cancer research…
March 8, 2025: Another 3 Months to Breathe!
We had very acute scanxiety leading up to this scan, both Christy and I. We aren’t sure why–Alexander is doing wonderfully well. His energy is up, school is going great, and he gets stronger and…
December 6, 2024: No Progression!
Scans show no progression! We just had our brain tumor clinic visit to review his full brain and spine MRI and lumbar puncture results from yesterday. We could not feel more relief to have another…
Sep. 13, 2024: Scanxiety Relief!
Scans show no progression of disease! After the nightmare of May and the extreme uncertainty of June, we are so glad to have the diagnosis confirmed. As we always say, this is not the end…
Sep. 9, 2024: Scanxiety and Gratitude
We haven’t posted in far too long. We have been focused on the moment and enjoying a wonderful summer filled with travel, experiences, and love. We’ll post more about those experiences in another post, but…