So dang hard. I keep trying to find lemonade. Here’s what I have today. When I sniff his head, it smells like when he was an infant. That’s all I got. Please keep sharing his story. That is so important to us!!!
Everything is hard
Browsing Category Cancer Update
Hot off the press!
2 days ago!!! Look what Rally Foundation for Childhood Cancer Research is funding for medulloblastoma! $150,000 in outside the box grants! We’re outside the box also! Ronald McDonald House of Memphis St. Jude Children’s Research Hospital
Trying new things to calm post anesthesia rage
After 22 general anesthesias, chemo, and radiation treatments, we have decided that there is no way to ease his rage post anesthesia. Well, at least with medications. We went full force with all the happy things today. I put him in his stroller, while in complete and total rage, with They Might Be Giants blaring on repeat (Istanbul and Birdhouse In Your Soul) and ran…
Day 20 of Radiation, Transitioning to Boost
Today was the final day of proton therapy to Alexander’s full brain and spine. It’s hard to believe we’ve been through 20 radiation treatments, 20 anesthesias, 20 stressful wakeups. Tomorrow he starts his boost treatments, radiation focused on the tumor bed and the spots on his spine. We think the process will take a bit less time, and we hope that the toll on Alexander…
Fever and hospital visit
Please think of us today. Not the restful Sunday evening we were hoping for. A fever caused us to take him quickly to the hospital. Tests, antibiotics, IV, etc happening now. Hoping a virus. We are all exhausted in so many ways. 💪🏻 Send love to our precious Alexander. 🥰 So thankful to be at Ronald McDonald House of Memphis and 2 minutes from St….
Radiation Day 19
I ended my last post not knowing whether Alexander would get boost radiation to the areas of concern on his spine. Now we know: he will get 5 boost doses to those areas. We are disappointed that he needs them, but the radiation oncologist says there is very little additional risk associated with this approach. The doc said to us over the phone, “If I…
9th of 30 RT treatments
I mostly try to share the brightest spots in our journey. I want people to share in our journey but know that we all need hope. This is hard. Everything is so very hard. I ponder daily how and why our lives shifted on 6/4. We got the bill today for the imaging that rocked our world. That’s what made me think about this again…
Boost Simulation and “Please”
It’s been a while since I’ve written an update. That’s mostly because things are fairly routine, and we aren’t learning much about his disease progression or cure right now. The signs of treatment have started to show in the last week, though. Alexander’s hair started to fall out late last week, and while Christy was with him in Nashville, the molting accelerated. He agreed to…
Rally! Foundation
This is a similar post but sharing because everyone is so wonderful and wants to help! https://rallyfoundation.org/alexander-browns-fund/ The first shirt order closes tomorrow. 🙂 I feel like every person that I know asks me what they can do to help. This is the thing of my heart ❤️: I want to raise as much money as possible for pediatric cancer research. Donations help a ton…
Please read these big updates
This could be the most important post that we have asked you to share/repost for several reasons. Please tag me and Matt Brown. Please sign up for text or email alerts on this site. 🙂 🐝💪🏻 Alexander is definitely feeling the effects of treatment. He has completed 15 treatments. He would not eat hardly anything at all yesterday. He has lost a half pound since…